MyData-TRUST
Hilton Grand Place, Brussels, Belgium - January 29, 2026
Data Privacy for Health Summit
Every year, MyData-TRUST is bringing together leading voices in Data Privacy and Life Sciences for a high-impact event filled with practical discussions and real-world expertise. Each edition of the Data Privacy for Health Summit is welcoming professionals from across the globe to dive into the challenges and innovations shaping the protection of health data in an evolving regulatory landscape.
Highlights from the 2026 edition

Agenda

8:30 AM – Check-In & Welcome Coffee

9:00 AM – Keynote : Healthy Data Protection
This introduction sets the tone: a fast tour of 2025’s biggest developments in data privacy and what they mean in practice. We will take stock of security, accountability, and cross-border compliance, clarify current regulatory expectations, and map the essential steps to build robust, trustworthy programs.
Elisabeth Dehareng

9:20 AM – Re-identification Risks and the Mosaic Effect: Are Health Data Ever Truly Anonymous?
This session will move beyond theory and walk participants through the practical steps of assessing re-identification risk using EU legal criteria. While anonymisation is often invoked as a binary (“anonymous vs. personal data”), both CJEU case law and WP29 guidance require a contextual, evidence-based evaluation. This session aims to make participants  capable of understanding and implementing such  evaluation.
Winnie Dongbou, Pierre-Antoine Gourraud, Donovan Sheppard, Timmothy Dangeon 

10:45 AM – Coffee Break

10:55 AM – AI × Health Data: Navigating Privacy in the Age of Generative Models
Discover how AI is reshaping the use of health data and the privacy challenges that come with it. The panel will discuss risks such as model leakage and data governance gaps, while outlining practical safeguards and compliance strategies. Participants will gain a clear understanding of how to responsibly develop and deploy AI systems in a highly regulated health-data environment.
Astou Ndiaye, Elisabeth Dehareng, Scott Russell, Michael Brown

11:45 AM – European Health Data Space in Action: From Regulation to Real-World Implementation
This session explores how the EHDS is transitioning from regulation to real-world practice. A diverse panel of representatives from key stakeholder groups will discuss the main implementation challenges from their respective perspectives and offer concrete proposals to bridge the gap between regulatory design and successful, on-the-ground application.
Anouk Berger, Claire François, Mikel Recuero, Wannes Van Hoof

01:00 PM – Lunch & Networking

2:00 PM – Privacy-Enhancing Technologies: Enabling Data Innovation Without Compromise
Explore how PETs enable valuable data use, AI development and collaboration while protecting privacy. Experts will highlight key healthcare use cases, benefits and limitations, and what organisations should consider when adopting PETs.
Gregory Collet, Sophie Stalla, Aymeric Pontvianne, Rafa Gálvez Vizcaín, Maarten Everts, Emmanuel Pham

3:30 PM – Global Digital Health Identity and Data Ownership: The Rise of the Patient Wallet
This session looks at the emerging concept of digital health identity and the growing role of the patient wallet. The panel will discuss how shifting models of data ownership, access and control are reshaping global health ecosystems and what this means for patients, providers and regulators.
Nathan Lea, Elena Gil, Vincent Keunen, Isabelle de Zegher

4:30 PM – Closing Remarks & Networking Event
We’ll wrap up with brief thank-yous and key takeaways, then invite you to stay for another 1–2 hours of relaxed networking. Join us for a drink and light bites, keep the conversations going, and connect with peers you didn’t get to meet during the day.

Confirmed Speakers

Pierre-Antoine Gourraud

Founder

Methodomics

Elisabeth Dehareng

Partner

Baker McKenzie's

Donovan Sheppard

Head of Legal Data Privacy

UCB

Aymeric Pontvianne

Chief Economist

CNIL

Rafa Gálvez Vizcaíno

Postdoctoral Researcher

COSIC (KU Leuven)

Claire François

Legal Program Director, EMEA Data Strategy & Privacy

Medtronic

Nathan Lea

Information Governance Lead

The European Institute for Innovation Through Health Data

Astou Ndiaye

Biologist, MBA Founder & CEO

Hale-X

Mikel Recuero

Privacy & ELSI Specialist Professor

University of the Basque Country

Emmanuel Pham

SVP Science & Customer Experience Europe

Nova In Silico

Vincent Keunen

founder and CEO

Andaman7

Sophie Stalla-Bourdillon

Co-Director

Brussels Privacy Hub

Maarten Everts

Professor, CTO & Co-founder

University of Twente & Linksight

Michael Brown

Privacy, AI and Technology Lawyer

University of Edinburgh Law School

Anouk Berger

Data Privacy Counsel

UCB

Timmothy Dangeon

Healthcare Data Scientist & Doctor of Pharmacy

MedicaAI

Scott Russell

Founder & CEO


Innatify

Isabelle de Zegher

Clinical Coordinator & b!loba Founder

AIDAVA

Elena Gil

Co-Founder


Data Guardians

Wannes Van Hoof

ELSI unit lead


Sciensano

2025 Brussels edition of Data Privacy for Health

Building on the success of our 2025 summit, next year’s edition will take place in Brussels (Hilton Grand Place), on January 29, 2026. Expect a full day of strategic insights, cross-industry discussions, and hands-on case studies exploring how privacy, AI, and data ethics are reshaping Health & Life Sciences. From GDPR & EHDS synergies to AI governance, synthetic data, and international data transfers, the 2026 agenda will bring together leading experts, regulators, and industry pioneers to chart the future of responsible data use in healthcare.
2025 edition

Why be part of the next edition?

  • Meet the experts shaping data privacy worldwide: from regulators and DPOs to pharma and tech leaders.
  • Gain actionable insights on GDPR, EHDS, AI governance, and ethical data innovation.
  • Learn from real-life case studies in Health & Life Sciences organizations facing complex compliance challenges.
  • Expand your network with peers and privacy professionals across Europe and beyond.
  • Experience the future of data with live demos on Synthetic Data, Gen-AI, and privacy-by-design solutions.
  • Be at the heart of the conversation: Brussels, where policy meets practice in data protection.
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